Personal stories about kidney dialysis

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Personal stories about kidney dialysis

These stories are based on information gathered from health professionals and consumers. They may be helpful as you make important health decisions.

Georgia, age 81: I've been on regular hemodialysis for the past 5 years. When I first started, I felt good and my activities were not limited. I was diagnosed with heart failure 2 years ago. Since then, my physical health has deteriorated. My doctor and I have discussed the possibility of kidney transplant, but because of my deteriorating health, we feel this would not be a good option. My preference is to stop dialysis and receive hospice care. I'm tired of not feeling good and want to die comfortably.

Marco, age 45: I've had family members receive dialysis because of end-stage renal disease. In fact, my aunt told me I would hate dialysis because she saw how miserable my grandmother was when she received dialysis over 30 years ago. Dialysis has changed so much since then. I started hemodialysis 4 years ago and have felt fine. In fact, I feel better than I did before starting dialysis! There certainly are diet changes, and sometimes my dialysis schedule is not convenient. However, I feel these are small prices to pay for feeling better. I'm awaiting a kidney transplant. Although I look forward to the day when I won't need dialysis, I wouldn't consider stopping.

Max, age 49: I have diabetes that has been very difficult to control. I received a kidney transplant 20 years ago. Two years ago, my kidneys began to fail and I started kidney dialysis. Even with dialysis, I have not felt good. Even with another kidney transplant, there is no guarantee that I will feel good again. I have had problems with fluid retention and my appetite is poor. I am tired of diet restrictions and the limitations of dialysis. I have discussed my wish to stop dialysis with my family and doctor, and they have been supportive.

Debbie, age 36: I started dialysis 3 years ago when my chronic glomerulonephritis progressed to ESRD. Even on daily peritoneal dialysis, I lead an active and productive life. I work full time and travel a lot. Even though dialysis requires organization, I don't feel that it negatively impacts my life. I feel good most of the time. At this point in my life, I wouldn't consider stopping dialysis.

Credits

Last updated:	July 31, 2006
Author:	Sabra L. Katz-Wise
Reviewed By:	Adam Husney, MD - Family Medicine, Ira Byock, MD - Palliative Care
Editors:	Susan Van Houten, RN, BSN, MBA, Pat Truman